Tuesday, August 28, 2007

The latest

Yesterday I had my follow-up appointment with my neurologist. We were going over the results from the spinal tap. This was the last test in a long line of tests. The results showed nothing new, but shed a little more light on the fact that I am dealing with MS. I know over the past few years of keeping everyone updated on my health I've stated that it wasn't MS. Actually, there were always conflicting reports. Lyme disease was for sure part of what I've been battling. We always knew there had to be something else, but weren't quite sure what it was. I still think MS is a generic diagnosis, but it's a diagnosis none the les. And after exhausting all test avenues we'll just rest and let it be called MS. to be really honest I don'tt care what it is, I am going to beat it. Here is my plan of attack: I think I might start taking an MS medication, which is supposed to stop the progression of the disease. While doing that I'll continue with the Chinese herbs, which will focus bringing my body back to where it once was physically. And of course continue with my physical therapy. I would like to know if anyone reading this blog has had first-hand knowledge of any MS medications or knows someone that has. Now that's my plan, but I know God always has a better plan. So most importantly the prayers need to keep coming and my faith needs to grow.

Tuesday, August 21, 2007

Tap that......




I can't believe how time flies. It's almost been 3 weeks since my last post. Just a week and a half ago I was in my neurologists office for the dreaded spinal tap. I had one 4 years ago and it was not a pleasant experience. Numbing my back with numerous shots was not pleasant, but the actual shot into my spine was the worst feeling. Once the doctor got the needle into my spine sweat poured down my face and I nearly passed out. So this is the experience I was preparing for. So as they prepped me on the bed we were laughing, just making jokes and having a good time. I handle stress usually with a joke. While we were talking I asked if my sister could take video or at least pictures of the experience. She agreed to pictures, so I have 2 to share. one is of the needle and the other is of the needle in my back while fluid was being drained into a tube. I know my sister and I are a little off kilter, I would have it no other way. Now the actual test was a breeze, no pain involved at all. Which this made me wonder what that previous doctor was doing. A day or so later I ended up in pain, my head was pounding. Headaches are a side effect to the test, but after a few days they relented and I've been fine since. Now next week we find out the results. This should be the last test on their way in trying to find out what else is affecting me, if anything. It's always easiest to pinpoint a problem and the solve it, but nothing with me is ever easy, so we'll see. I really don't care at this point, I'm going to beat whatever I'm dealing with. It's been a long road and I've battled back this far, no reason to doubt I'll beat it now.

Wednesday, August 01, 2007

Small Goals Met

I looked back at my posts and realized that the last time I walked was in February. I had taken 151 steps, but right at the end I tweaked my back pretty bad. Since then I've been seeing a chiropractor and working on getting my back fixed and get it stronger for when I do start walking again. Well, after nearly 5 months I knew it was time. Being as it's been so long I knew it was going to be tough and I had to set my goals low. I am so hard on myself and have a tendency to beat myself up if I don't meet or exceed goals. So yesterdayI set my goal at 3 continuous steps, I walked 4 and a total of 9 for the day. I was thrilled with that, it felt so good to be walking again. Now today at home I set a goal of 5, I walked 8 and after that did another 8, so I've almost doubled yesterdays grand total of 9 and I'll do more later. Although it's a far cry from my mst of 202, I feel well on my way to that.